Let me just tell you for this first time in my life I feel like Michelle's
MOTHER not just her caretaker who loves her more than the world!
Remember I was concerned over the fact that Michelle had been in some pain? Well let me tell you I figured out what it was and im proud to say that I did it without the assistance of ANY doctors.
Here is what I discovered....
Her feeding tube has caused alot of issues the last few months. From causing her to stop breathing because of retching (yes that was the scariest thing), massive amounts of constipation causing her to be on twice daily laxatives, irritation around the tube site, 3 infections of the tube, granualtion tissue buildup, and probably a million other things I can't remember right now! Oh and the fact that it has come dislodged 4 times! Last time was HORRIBLE!
So this mama took it upon herself seeing as I know she can tolerate table food just fine to stop giving her her day feeds, well that didn't make much of a difference. Still in pain constantly... Ok after about a week I gave up and just unhooked her one night when she was screaming in pain and said thats it no more.
Since that night she has done FANTASTIC! I still get middle of the night wake up calls for more milk and her daddy doll but no other problems. No constipation, no retching, no PAIN! No medicine.
I had already told her pediatrician I was going to eventually do this it was just a matter of time. Im glad I did. The other thing was her Keppra... This I did under the advisory of her pediatrician. She has not had a seizure since August I think. Generally they like to see them go 6 months medicated before they take them off but she was sick with a fever when she had that seizure so you do the math on that one.
As a matter of fact she has been sick when ALL of her seizures have happened! So this momma and her ped took her off of her Keppra. Now I still have it in the house just in case. But so far so good. No more drugged up lethargic baby!
And soon to have no feeding tube because if her GI thinks im letting him keep it in im asking for a second opinion! They don't do anything for her anyway when we do go down there. It's a 5 minute appointment and were done. I drive an hour for a 5 minute appointment. Not so much!
Im gloating slightly that 6 brainiack doctors could not figure out why she was in constant pain and it took my gut instincts to know something was not right and to fix it the right way. From now on gut talk all you want im listening! I always follow it it's just a matter of me listening to it sometimes!
Oh and believe me this baby EATS! Like 6 times a day! I can't believe it! Im careful to not get stuff with eggs in it. And the only pizza place in town that doesn't use eggs in their dough is Papa John's so they have become our favorite! They were always good but now they are even better!