Thanks Google...
10 years ago
Sunday, May 30, 2010
Saturday, May 29, 2010
Surgery today....
Today is the big day. Im getting pretty nervous about this seeing as how we talking about putting a shunt into the lining surrounding her lungs... Stop me if I have it wrong but that is what my understanding is. Trust me I have asked and asked and asked questions I just can't figure out anymore to ask.
We lost her IV last night so I am going to see how many more days he expects us to be here and if it's longer than I had hoped for I am going to request either a PICC or a Central Line. She has had both in the past and it just makes for a nicer Michelle if we don't have to keep sticking her with needles everytime we turn around.
Yesterday has to have been the best day that we had yet. She was awake, smiling, laughing, eating and just being her. And then last night right before I got back to the hospital (I had to go get the registration done one Shawn's truck and being the only one with power of attorney I had to to do it.) she started retching and crying and just being crabby.
We tried Morphine and Zofran and Tylenol and holding and well just about anything else we could try and nothing helped. Im hoping that whatever it is that once she has this surgery it will go away. They came in and clamped her EVD not that long ago and we are looking at 8 to go in. So in about and hour we will be heading upstairs to the OR.
I am truely thankful that we have had awesome nurses this week. Well with the exception to Wednesday anyway. But then again because I was such a pain in her you know what things got done that needed to be done. Our poor night nurse the last 2 nights im not so sure if she has truely had a chance to sit down and even do what she needs to do. She was in here every 15-20 minutes last night.
I think im going to go and get ready to go upstairs. The OR is so unpredictable that my luck would be that they call her early and im not even ready. I will update just as soon as I can!
We lost her IV last night so I am going to see how many more days he expects us to be here and if it's longer than I had hoped for I am going to request either a PICC or a Central Line. She has had both in the past and it just makes for a nicer Michelle if we don't have to keep sticking her with needles everytime we turn around.
Yesterday has to have been the best day that we had yet. She was awake, smiling, laughing, eating and just being her. And then last night right before I got back to the hospital (I had to go get the registration done one Shawn's truck and being the only one with power of attorney I had to to do it.) she started retching and crying and just being crabby.
We tried Morphine and Zofran and Tylenol and holding and well just about anything else we could try and nothing helped. Im hoping that whatever it is that once she has this surgery it will go away. They came in and clamped her EVD not that long ago and we are looking at 8 to go in. So in about and hour we will be heading upstairs to the OR.
I am truely thankful that we have had awesome nurses this week. Well with the exception to Wednesday anyway. But then again because I was such a pain in her you know what things got done that needed to be done. Our poor night nurse the last 2 nights im not so sure if she has truely had a chance to sit down and even do what she needs to do. She was in here every 15-20 minutes last night.
I think im going to go and get ready to go upstairs. The OR is so unpredictable that my luck would be that they call her early and im not even ready. I will update just as soon as I can!
Friday, May 28, 2010
My computer loves me yay!!!!!!!
Ok so I promise to go more into detail next week when things calm down but for now here's the scoop!
Today we have to do all of our pre-op stuff because tomorrow is the big day and im going to say I AM EXCITED!!! I want out of here. I love this place because of what they can do for Michelle and I feel so at home but I want to go HOME!
She is finally awake awake and eating and talking and even getting slightly annoying like always! Such a bummer that she isnt going to be like that tomorrow. But I know that she will bouce right back with her pressures down and some more food in her belly!
She finally ate today and is going to the bathroom just fine (FINALLY!) I promise to update just as soon as I can. I hope to have some more answers today after I have my meeting with all the doctors.
Today we have to do all of our pre-op stuff because tomorrow is the big day and im going to say I AM EXCITED!!! I want out of here. I love this place because of what they can do for Michelle and I feel so at home but I want to go HOME!
She is finally awake awake and eating and talking and even getting slightly annoying like always! Such a bummer that she isnt going to be like that tomorrow. But I know that she will bouce right back with her pressures down and some more food in her belly!
She finally ate today and is going to the bathroom just fine (FINALLY!) I promise to update just as soon as I can. I hope to have some more answers today after I have my meeting with all the doctors.
Wednesday, May 26, 2010
she's awake!!!!!!
I can't believe it. An almost 360 from earlier today!
Praise God!
She asked the nurse in the pacu where I was, they called me and when I got in there she informed me she wanted a popsicle.
I am currently thinking of going to the grocery store to buy all of their popsicles.
She has eaten food. Talked to her aunt tiffy, watched cartoons and is taking a non morphine/ high pressure snooze!
Her doctor says to give her a while that she is still critical and will return to herself in a few days.
She will be having her 4th surgery probably friday or saturday to put the catheter in her lungs or her heart. For now its externalized. But she's awake!!!!!!
Praise God!
She asked the nurse in the pacu where I was, they called me and when I got in there she informed me she wanted a popsicle.
I am currently thinking of going to the grocery store to buy all of their popsicles.
She has eaten food. Talked to her aunt tiffy, watched cartoons and is taking a non morphine/ high pressure snooze!
Her doctor says to give her a while that she is still critical and will return to herself in a few days.
She will be having her 4th surgery probably friday or saturday to put the catheter in her lungs or her heart. For now its externalized. But she's awake!!!!!!
wishing and praying and praying and wishing....*update 1*
Oh this week has been something else.
3 revisions, 48 hours, 3 catscans, 18 x-rays, 15 needle pokes and 1 gastro scan.
We are on standby for the or again. I am hoping that we do not have to go but I also want to get her better and bring her home.
So here's the latest:
*not waking unless she is extremely painfully woken up (not fun let me tell you). Even with the morphine decreased to every 6 hours she still sleeps. Plus she hasn't had any in about 10.
So there it is. Please continue to pray for Michelle. We want her home with us.
*update*
Michelle went back into surgery a little bit ago. Her shunt that goes into the lateral ventrical on her right side just wasn't draining right. Our hopes are that her belly is goig to accept the 3rd system but so far it doesn't look like it.
If they have to pull that one they will have her drain to a bag for 2 days and then look into putting it in her lungs.
3 revisions, 48 hours, 3 catscans, 18 x-rays, 15 needle pokes and 1 gastro scan.
We are on standby for the or again. I am hoping that we do not have to go but I also want to get her better and bring her home.
So here's the latest:
*not waking unless she is extremely painfully woken up (not fun let me tell you). Even with the morphine decreased to every 6 hours she still sleeps. Plus she hasn't had any in about 10.
So there it is. Please continue to pray for Michelle. We want her home with us.
*update*
Michelle went back into surgery a little bit ago. Her shunt that goes into the lateral ventrical on her right side just wasn't draining right. Our hopes are that her belly is goig to accept the 3rd system but so far it doesn't look like it.
If they have to pull that one they will have her drain to a bag for 2 days and then look into putting it in her lungs.
Tuesday, May 25, 2010
please pray for michelle.
She needs your prayers more than ever.
All 3 of her shunts have had to be replaced within the last 48 hours and not just the proximal catheter the distal portion too.
The problem we are running into is sacr tissure, and lots of it. Her surgeons (plural. Getting to that) are optomistic that they won't have to go back in and move them elsewhere ie; heart, lungs.
Please pray we are able to leave her shunts where they are and that she doesn't need a third surgery this week.
While her surgeon was attemting to connect 2 of the shunts to 1 tubing it continuously kinked and refused to drain. So he decided to seperate them and give her 3 seperate shunt systems. Dr. Sines her g-tube nissen/fundo surgeon had to come and assist so that they could get the tubing in her belly. It just didn't want to take it.
Please pray for our baby girl. She needs it.
All 3 of her shunts have had to be replaced within the last 48 hours and not just the proximal catheter the distal portion too.
The problem we are running into is sacr tissure, and lots of it. Her surgeons (plural. Getting to that) are optomistic that they won't have to go back in and move them elsewhere ie; heart, lungs.
Please pray we are able to leave her shunts where they are and that she doesn't need a third surgery this week.
While her surgeon was attemting to connect 2 of the shunts to 1 tubing it continuously kinked and refused to drain. So he decided to seperate them and give her 3 seperate shunt systems. Dr. Sines her g-tube nissen/fundo surgeon had to come and assist so that they could get the tubing in her belly. It just didn't want to take it.
Please pray for our baby girl. She needs it.
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