I had that moment...

Only when I get completely frustrated with everything and everyone do I have these moments. Here lately it seems like they are coming more often. Maybe because im pretty irritated that Michelle's doctors who have gone to YEARS of medical school have sort of just given up on trying to figure out whats up until she gets worst. So basically I feel like a really mean grizzly bear fresh out of hibernation trapped in a cage and they ae not giving me food.<- best analogy I could come up with.

I am watching her, and everyday she has a new or worsening symptom. Today's symptom... barely eating. But since she is still tolerating her g-tube feedings there isnt much I can do as of yet. Basically they are waiting for the sign that the pressures are increased before they do anything. At this point if they admitted just to monitor (idea was brought up by the NS Nurse Practitioner) her that sounds better then them doing nothing. But then again flu season is starting around here and I can't bear to have all my babies sick if she does go in. So for now we wait.

Waiting is annoying. And as annoying as it is I completely understand it. I have been scouring the internet for some sort of answer. Something, anything. An explanation of just normal 4 year old behavior would be fantastic but no, the doctors say this is not anywhere near normal behavior for even a child with no medical issues. And were back to annoying.