Ok im lost, someone help!

There is no amount of research that can tell me what the heck is going on with Michelle. Here are her symptoms and you tell me if you have ever seen any of these. Seriously im desperate. The doctors all probably think im crazy because she is fine when we are there but than slips right back into it within a few minutes of a "good mood" as im calling it right now.

* Extreme mood swings. Extreme like the cat and dog fight all day long and the next minute you see them snuggled together under the porch. They are horrible.

* Anxiety. You would honestly think the child was being murdered with the way she screams at times.

* Sleepy all the time (so far all CT scans show no increased pressure and her opthamolagist even checked her eyes for shunt malfunction yesterday.)

* Phantom headaches. One minute they are there and the next they are gone.

Im at a loss. My nerves are fried and im ready to rebreak my phone (Abigail tossed it into the toilet but I managed to fix it). I cannot go into the garage to throw the trash away when Michelle is awake. I either have to wait until she is at school or do it when she is sleeping. She wakes up at random times which is making for an even more confused me. She's still eating with no problems and tolerating her g-tube feeds. Neurology wont return my calls, Neurosurgery says it's not their deal, her pediatrician has referred her to the ER IDK how many times and the same thing comes from it... Nothing. Absolutely nothing. It seems to have been a complete waste of time and nobody can tell me why she is having these VERY sudden mood changes.